Tools

This tool is an article that describes how protected health networks may help facilitate information sharing among multiple entities while leaving most protected health information and proprietary data in the possession of the original data holders.

Figshare is a data repository tool. Researchers can make all of their data and other research outputs available in a citable, shareable, and discoverable format.

The tool is an NHS website on information governance.

This tool is a Centers for Disease Control and Prevention (US) website that provides an overview of two key federal laws that regulate health information & privacy practices in the US.

The ICO is a UK independent authority set up to uphold information rights, data privacy, and transparency. This tool is a website provides resources for individuals and organizations interested in health information.

This tool describes a clinical dashboard development framework titled the electronic healthcare data visualization (EHDViz) toolkit.

This tool is a maturity model that enables stakeholders to assess progress towards data interoperability.

This tool contains the interoperability standards and accompanying resource guide for HL7 FHIR.

This tool is a journal article that describes the design and implementation of a tethered patient health record using HL7 Fast Healthcare Interoperability Resources (FHIR). This may be helpful for those interested in primary data collection and analysis.

The Cynefin framework is a sense-making tool that can help explicate the perceived complexity of a wide range of issues, including LHS. It is especially useful in terms of allowing shared understandings to emerge through collective sense-making.